Databases

Council for Responsible Genetics convenes experts and the public for database and genetics conference

Genetic privacy — The World Privacy Forum participated in a Council for Responsible Genetics (CRG) conference on genetic databases at New York University. The groundbreaking conference focused on key issues of race and genetic databases, fairness, accuracy, and privacy. The World Privacy Forum discussed a paper by Dr. Harry G. Levine, Drug Arrests and DNA, noting that innocent victims of medical identity theft may be arrested for the “drug seeking behavior” of the criminals impersonating them.

World Privacy Forum files comments with FTC regarding credit -based insurance scoring

Financial privacy — The World Privacy Forum filed comments with the Federal Trade Commission today about its proposed study of credit -based pricing practices for homeowners insurance. The World Privacy Forum requested that the FTC ask insurers if there are specific procedures in place for detecting, mitigating, and responding to consumers who have been victims of identity theft. The WPF noted its support for the FTC’s use of the FTC Act Section 6(b) authority to acquire robust information from the insurance companies.

Legal and Policy Analysis: Personal Health Records: Why Many PHRs Threaten Privacy

New publication | PHRs and privacy — The World Privacy Forum has published a new legal and policy analysis examining Personal Health Records — or PHRs — and the privacy issues associated with them. This analysis, Personal Health Records: Why Many PHRs Threaten Privacy, was prepared by Robert Gellman for the World Privacy Forum. The analysis finds that significant, serious threats to privacy exist in some PHRs.