De-Identification and reidentification

Report Announcement: Privacy in the Clouds

WPF report announcement — The World Privacy Forum’s newest report examines the privacy and confidentiality issues of cloud computing that have been largely overlooked to date. It is a thorough analysis with policy findings.

Privacy in the Clouds: Risks to Privacy and Confidentiality from Cloud Computing was written by Robert Gellman for the World Privacy Forum.

Cloud computing tips for consumers and business are also available.

World Privacy Forum Requests That CMS Bring Its Medicare Part D Data Activities Under HIPAA and Require Certificates of Confidentiality to Protect Patient Privacy

Medical privacy | Medicare Part D — In comments filed with the Centers for Medicare and Medicaid Services, the World Privacy Forum requested that CMS give effect to data restrictions that Congress has expressly included in the law. WPF also requested that CMS include in its standard agreements for use of CMS data a requirement that the recipient obtain a certification of confidentiality for all identifiable CMS data. WPF also requested that CMS perform a regulatory impact analysis and publish a system of records notice.

World Privacy Forum Comments on Proposed Policy for Genetic Database

Genetic privacy — Genome-wide association studies present complex and challenging privacy issues. The National Institutes of Health, in a published request for information, asked for public comment on its proposed policy regarding its support and management of a central genomic repository for genome-wide association studies. In comments filed with the National Institutes of Health, the World Privacy Forum raised concerns about the proposed NIH policy in the specific areas of genetic identifiability, secondary uses of the genetic data, oversight, legal protections, and informed consent.

AOL Releases The Unfiltered Search Histories Of 657,000-Plus Users; World Privacy Forum Filing FTC Complaint

AOL released three months’ worth of the detailed search queries of 657,000-plus of its users. The approximately 20 million search queries and the additional data on users’ click-throughs to web sites in the search results are generally highly revealing of individuals’ personal, financial, political, medical, religious, and other preferences as well as the businesses and people they associate with.

Public Comments: July 2006 – WPF comments on draft report “Policy Issues Associated with Undertaking a Large U.S. Population Cohort Project on Genes, Environment, and Disease.

The collection of DNA material from 500,000 to 1,000,000 or more individuals as part of a large U.S. medical research project raises many challenging ethical, legal, and privacy issues. An advisory committee reporting to the Office of the Secretary of Health and Human Services ( the Secretary’s Advisory Committee on Genetics, Health and Society) has published a detailed analysis of the issues such a project would raise in a draft report. The committee’s final report and policy recommendations will be submitted to the Secretary of HHS. The World Privacy Forum has submitted public comments on the draft report; the comments include key policy recommendations. The Forum’s recommendations include the need to provide protection from compelled disclosure of information, the necessity for a full-time project privacy officer with enforcement power, and the need for a far-reaching and robust privacy policy that exceeds the requirements of HIPAA, among other recommendations.

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