Genetic Privacy — The World Privacy Forum filed public comments with the Department of Health and Human services in response to an HHS request for information regarding the use of patients’ genetic data for research, health care, and for use in electronic health records. The World Privacy Forum is requesting that HHS use all Fair Information Principles in any personalized health care projects, and is requesting that a formal ELSI (ethical, legal, and social implications) committee be set up to oversee any projects, among other requests.
e-Government /CIPSEA — The World Privacy Forum submitted comments to the Office of Management and Budget regarding proposed guidance on Title V of the e-Government Act. The proposed guidance did not address the relationship between CIPSEA and the USA PATRIOT Act Section 215, and guidance regarding identifiability and the Privacy Act of 1974 needs to be further refined. WPF suggests that OMB consider developing a formal statistical confidentiality seal controlled by a federal agency. The purpose would be to provide an identifiable marker that would tell individuals if the information they provide will receive the highest degree of confidentiality protection available under law.
Internet privacy — The World Privacy Forum announced today that it would be filing a complaint with the Federal Trade Commission about the posting by AOL of a portion of its users’ search data on the Internet. While the data was not expressly identified by name, the search queries themselves included in some cases personally identifiable information such as individuals’ names, Social Security Numbers, and myriad other personal information. The World Privacy Forum urges consumers to take precautions when using search engines.
AOL released three months’ worth of the detailed search queries of 657,000-plus of its users. The approximately 20 million search queries and the additional data on users’ click-throughs to web sites in the search results are generally highly revealing of individuals’ personal, financial, political, medical, religious, and other preferences as well as the businesses and people they associate with.
The World Privacy Forum and the Privacy Rights Clearinghouse have become aware of a nationwide job scam currently in action. We are advising job seekers to avoid any response to job ads coming from Macrocommerce Intersales and to be aware of the high potential for financial fraud and /or identity theft if they have already responded to job ads from this company.