Health Privacy

About health privacy, World Privacy Forum key health privacy resources

The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues. 

Some of our most frequently accessed health privacy resources include:

* A Patient’s Guide to HIPAA

* Medical Identity Theft Page (resources, reports, more)

* Health privacy tagged materials 

* HIPAA tagged materials 

* Electronic Health Records tagged materials 

* Common Rule and Human Subject Research Protection tagged materials

* Genetic privacy tagged materials 

We have many more publications and resources. For a full list of topics and publications, see our key issues page.

See below for health privacy news and content by date.

World Privacy Forum asks FTC to reconsider proposed consent agreement with CVS

CVS Caremark | FTC proposed consent agreement — The World Privacy Forum filed comments with the Federal Trade Commission in response to its proposed consent agreement with the CVS Caremark pharmacy chain. The proposed agreement is in resonse to a CVS data breach. The agreement does not impose a monetary penalty on CVS, and does not provide remedies for consumers affected by the data breach.

California Health Information Identification data base California CHILI database now online

Resource — A substantial new resource for individuals seeking to research California laws and regulations regarding health information has come online. The CHILI database is a project of the California Office of Health Information Integrity, and has interfaced with the California Privacy and Security Advisory Board, which the World Privacy Forum co-chairs. The CHILI database can be searched by HIPAA section, California Code section, California health information law keywords, or by statutory scheme.

Public Comments: March 2009 – Comments on the Proposed Consent Agreement with CVS / Caremark

The World Privacy Forum filed comments with the Federal Trade Commission in response to its proposed consent agreement with the CVS Caremark pharmacy chain. The proposed agreement is in resonse to a CVS data breach. The agreement does not impose a monetary penalty on CVS, and does not provide remedies for consumers affected by the data breach. The World Privacy Forum urged the FTC to reconsider the agreement.

WPF Resource Page: The National Health Information Network Page

The National Health Information Network (NHIN) is an ambitious modernization plan proposed by the U.S. government. The idea is to move as an entire nation from paper medical files to electronic medical files that are shared. Specifically, the government goal is to digitize patients’ health records and medical files and create a national network to place the information in. The network, called the NHIN, would be a sophisticated network that hospitals, insurers, doctors, and others could potentially access. Such a network brings patient privacy, security, and confidentiality issues into sharp relief.