Public Policy

NTIA drafting process ongoing

Mobile Privacy — The World Privacy Forum attended the NTIA Multistakeholder meeting as one of the core drafters of the code of conduct being considered by the NTIA Multistakeholder process. WPF and the other drafters are accepting comments from all stakeholders in preparation of the next iteration of the draft.

World Privacy Forum: California, Don’t Weaken Californian’s Health Privacy Laws

July 21, 2012 San Diego, California — Today the World Privacy Forum filed comments on California’s plan to harmonize existing California state law to federal health privacy laws. California’s health privacy law, the CMIA, offers Californian’s stronger privacy protections than national level health privacy laws. WPF urges California to reconsider its plan to weaken Californian’s privacy. Executive director Pam Dixon said “The harmonization plan coming out of California’s Department of Health and Human Services is not in harmony with California patients and their health privacy.”

Public Comments: May 2012 – WPF Asks Presidential Commission to Protect Genetic Privacy

WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.

WPF Asks Presidential Commission to Protect Genetic Privacy

Genetic Privacy | Bioethics — WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.