Research

World Privacy Forum files public comments and recommendations on pharmacogenomics privacy: all patient-specific PGx research should require certificates of confidentiality

information will expand greatly in the future. In public comments filed with the National Institutes of Health on pharmacogenomics (PGx) research, or research using genetic information to create highly personalized medicine, the World Privacy Forum recommended that all research activities that involve any type of patient-specific genetic information be required to have certificates of confidentiality, whether that information appears identifiable or not. The WPF also urged the NIH to require strong data use agreements to protect individuals’ privacy. The WPF also urged NIH and the Department of Health and Human Services to reinstate the position of “privacy advocate” so as to provide oversight in this area.

Timeline: The evolution of a job scam

Job applicant rights and privacy — This visual timeline chronicles a year of a job scam. The timeline documents the cities the fake jobs were targeting, dates the jobs posted, the various company names the scam operated under, and the contact names used in the scam. The job scam timeline is documented with screen shots of the job listings and how they looked as posted. The scam is still active.

Inaugural World Privacy Forum Report, 11 November 2003

Job Searching in the Networked Environment: Consumer Benchmarks — The World Privacy Forum officially launches with this inaugural report, a study a year in its research on the job search sector. This study, The 2003 Job Search Privacy Study: Job Searching in the Networked Environment: Consumer Benchmarks , documents job applicant privacy across the job search industry from resume writers to job search sites to resume blasters and other parts of the job search infrastructure.

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