The World Privacy Forum filed comments with the U.S. Department of Commerce in response to its Request for Comments about big data, privacy, and the Consumer Privacy Bill of Rights. The White House Big Data report recognized that Big Data “raises considerable questions about how our framework for privacy protection applies in a big data ecosystem” and has the potential to “eclipse longstanding civil rights protections in how personal information is used in housing, credit, employment, health, education, and the marketplace.” This is among our concerns as well, and our comments focused on understanding big data’s benefits while drawing attention to where there are significant privacy risks that need to be addressed.
Here is an update on some of the stories in privacy over the past few months. For a complete list, see our full World Privacy Forum in the news page.
Health Information Exchanges are in the news right now. Here is a quick list of our HIE information for consumers: See WPF’s HIE Category Page for privacy tips and resources all in one place WPF has a FAQ sheet on Health Information Exchanges for consumers here. WPF also has a map of California HIE’s available here. WPF
Today, health insurers Blue Shield of California and Anthem Blue Cross announced the creation of a statewide database of patient medical records in California called Cal INDEX. When it launches later this year, it will be the country’s largest health information exchange, or HIE. The exchange is set to disseminate patient’s longitudinal medical files, and
If you are a Facebook user and you would like to opt out of having Nielsen Online tracking and measuring your online moves and habits, here’s how to do that ….