Download PDF Download ePub Donate Credits → Version 2.0 Prepared by Robert Gellman for the World Privacy Forum, with assistance from Pam Dixon, executive director, World Privacy Forum. John Fanning, former privacy advocate, U.S. Department of Health and Human Services, and Dr. Lewis Lorton, health technology and privacy expert contributed to the first edition

WPF Executive Director Pam Dixon was named as a Top 100 Influencer in Identity by One World Identity. OWI describes the list as including the “Top 100 people to know in 2019: pioneers who are leading the charge to improve identity….

Identity is a data-rich key that acts to unlock all levels of the emerging digital ecosystem. All forms of ID carry some risk, but digital forms of ID, or “dematerialized ID,” cuts across all sectors and generates particularly copious data about people, their behaviors, financial status, associates, and potentially even political and religious views. Over time, distinct patterns emerge from the data and have in the past created new kinds of risks for individuals and groups…..

WPF has written to the US Department of Health and Human Services advising them on their Request for Information (RFI) about possible changes to HIPAA privacy and security protections. The RFI has a number of suggestions that, should they become part of a formal proposal, would significantly weaken HIPAA privacy protections.

We have updated our medical data breach map to bring it current to January 2019. This interactive map displays the location of each medical data breach recorded at the US Department of Health and Human Services from 2009-2018. To get the most from the map, you can view breaches by year, by region, and in a simple text list.