Electronic Health Records

Mar 03 2021

WPF urges US Federal Trade Commission to re-examine data breach notification requirements for health data in Flo Health proposal

The World Privacy Forum has submitted comments to the FTC regarding its proposed consent order In the Matter of Flo Health, Inc. requesting that the FTC conduct further analysis regarding the FTC Health Data Breach Rule and its potential applicability to the alleged unconsented sharing of women’s pregnancy, menstruation, mental health, and other data with

Oct 27 2020

World Health Organization updates its data sharing principles; WPF participant in external expert advisory group

This summer, the World Privacy Forum served as a member of the World Health Organization’s External Expert Group on Data Principles. We are pleased to announce that WHO has now published its updated data principles and data sharing policy, as of October 2020. While there are additional items that WPF would like to address in

Nov 12 2019

WPF to testify before NCVHS on emerging privacy concerns in health privacy — Beyond Digitization: Artificial Intelligence, APIs, and health privacy

WPF Executive Director Pam Dixon will testify before the full committee of the National Committee on Vital and Health Statistics (NCVHS) regarding emerging privacy concerns in the healthcare environment, including the role of artificial intelligence, patient authorizations, and automated access to patient health information. The NCVHS is the statutory [42 U.S.C. 242k(k)] public advisory body

Jan 03 2019

Health Industry Cybersecurity Practices: New consensus practices and tools from HHS

The US Department of Health and Human Services (HHS) has produced a set of cybersecurity resources for healthcare provider organizations from small to large. So far, HHS has published four documents: an overview report of cybersecurity issues and practices, two technical volumes, and a toolkit. The documents focus on what an expert multistakeholder consensus group determined to be the five most prevalent cybersecurity threats and the ten core cybersecurity practices. The practices are voluntary, and utilize the NIST cybersecurity framework. The documentation is based in reality, not conjecture, and the documents are not intended to sell any particular products for any particular vendor. This has allowed for a rich and helpful documentation of current challenges along with solutions. See our overview of the four new resources.

Nov 21 2014

Video: What does “opt in” or “opt out” mean in a health information exchange?

This video is part 8 of a 14-part video series on health privacy and health information exchanges Video: I just read the privacy policy at the doctor’s office, and it said that I would have to opt out of an HIE. What does that mean exactly? Opt in and opt out are terms that are

National IDs Around the World — Interactive map

About this Data Visualization: This interactive map displays the presence...
Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974

This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process.
COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.