Reports

Frequently accessed WPF reports:

Analysis & Report: Redress Revisited: Has the Privacy Shield Agreement Between the U.S. and the EU Been Fatally Undermined by President Trump’s Executive Order 13768?

Report: EU-US Privacy Shield Analysis: Winners and Losers

Report: Privacy, the Precision Medicine Initiative, & the All of Us Research Program: Will Any Legal Protections Apply?

Report: The Scoring of America

Report: Data Brokers and the Federal Government

Report: Paying Out of Pocket to Protect Health Privacy – A New but Complicated HIPAA Option

Report: One Way Mirror Society

Report: Medical Identity Theft – The Information Crime that Can Kill You

Report: Many Failures – A Brief History of Privacy Self-Regulation

Report: One Way Mirror Society

Report: The US Department of Commerce and International Privacy Activities — Indifference and Neglect

Report: Personal Health Records – Why Many PHRs Threaten Privacy

Report: Privacy in the Clouds

A complete list of WPF reports is available here.

WPF Report – Privacy, the Precision Medicine Initiative, & the All of Us Research Program: Will Any Legal Protections Apply?

Medical treatments tailored to each individual’s physiology and genetic history have long been a dream, but this dream is data-intensive. The most current effort to turn personalized medicine into a reality is the Precision Medicine Initiative (PMI), which will collect and share biospecimens and health data from over a million volunteers for research — this report analyzes the privacy protections for this initiative.

Analysis & Report | Redress Revisited: Has the Privacy Shield Agreement Between the U.S. and the EU Been Fatally Undermined by President Trump’s Executive Order 13768?

This analysis is an in-depth look at the January 2017 Executive Order 13768, Enhancing Public Safety in the Interior of the United States, and its interaction with two laws, the Privacy Act of 1974 and the Judicial Redress Act of 2015. Regardless of the reasons underlying why the order was written, a key question this analysis considers is if the order damages the EU-US Privacy Shield agreement, and what that means.

Report — US – EU Privacy Shield Analysis: Winners and Losers

This substance of this analysis is about the new EU-US Privacy Shield, with contextual background and an analysis of how this new proposal compares to the old EU-US Safe Harbor agreement. The analysis includes a discussion of winners and losers in Privacy Shield, and discusses its potential future.

WPF Report — The Scoring of America: How Secret Consumer Scores Threaten Your Privacy and Your Future

To score is human. Ranking individuals by grades and other performance numbers is as old as human society. Consumer scores — numbers given to individuals to describe or predict their characteristics, habits, or predilections — are a modern day numeric shorthand that ranks, separates, sifts, and otherwise categorizes individuals and also predicts their potential future actions. This new report by Pam Dixon and Robert Gellman explores this issue of predictive scores and privacy.

WPF Report — Paying out of Pocket to Protect Health Privacy: A New but Complicated HIPAA Option; A Report on the HIPAA Right to Restrict Disclosure

This Jan. 30, 2014 report discusses a new right to restrict disclosure of health information under the updated HIPAA health privacy rule. The new provision called “Pay Out of Pocket,” also called the “Right to Restrict Disclosure” gives patients the right to request that their health care provider not report or disclose their information to their health plans when they pay for medical services in full. Navigating the new right will take effort and planning for patients to utilize effectively. This substance of this report is about the new patient right to restrict disclosure, and how patients can use it to protect health privacy.