Reports

Most frequently accessed WPF reports:

Report: The Scoring of America

Report: Data Brokers and the Federal Government

Report: Paying Out of Pocket to Protect Health Privacy – A New but Complicated HIPAA Option

Report: One Way Mirror Society

Report: Medical Identity Theft – The Information Crime that Can Kill You

Report: Many Failures – A Brief History of Privacy Self-Regulation

Report: The US Department of Commerce and International Privacy Activities — Indifference and Neglect

Report: Personal Health Records – Why Many PHRs Threaten Privacy

Report: Privacy in the Clouds

A complete list of WPF reports is available here.

New WPF Report – The Precision Medicine Initiative and Privacy: Will Any Legal Protections Apply?

This new World Privacy Forum report reviews privacy law applicable to the Precision Medicine Initiative (PMI), and the large medical information and biospecimen database at its center. The HIPAA health privacy rule and its protections for individuals will not apply to PMI research activities. The key privacy concerns raised by the PMI are the lack of applicable law to govern its collection and use of individuals’ health data, the potential waiver of the patient-physician legal privilege that can shield data from disclosure through litigation, and the possibility of law enforcement access to patient records held in the PMI.

Report — US – EU Privacy Shield Analysis: Winners and Losers

The report US- EU Privacy Shield Analysis: Winners and Losers  was published April 6, 2016. Report authors: Robert Gellman and Pam Dixon You are at the report main page, where you can download the full report in PDF format. Report Links: Download full report (PDF, 9 pages) Read “report in brief” front matter below. — The Analysis in

WPF Report — The Scoring of America: How Secret Consumer Scores Threaten Your Privacy and Your Future

To score is human. Ranking individuals by grades and other performance numbers is as old as human society. Consumer scores — numbers given to individuals to describe or predict their characteristics, habits, or predilections — are a modern day numeric shorthand that ranks, separates, sifts, and otherwise categorizes individuals and also predicts their potential future actions. This new report by Pam Dixon and Robert Gellman explores this issue of predictive scores and privacy.

WPF Report — Paying out of Pocket to Protect Health Privacy: A New but Complicated HIPAA Option; A Report on the HIPAA Right to Restrict Disclosure

This Jan. 30, 2014 report discusses a new right to restrict disclosure of health information under the updated HIPAA health privacy rule. The new provision called “Pay Out of Pocket,” also called the “Right to Restrict Disclosure” gives patients the right to request that their health care provider not report or disclose their information to their health plans when they pay for medical services in full. Navigating the new right will take effort and planning for patients to utilize effectively. This substance of this report is about the new patient right to restrict disclosure, and how patients can use it to protect health privacy.

WPF Report – Data Brokers and the Federal Government: A New Front in the Battle for Privacy Opens, Part III in a series

This report focuses on government use of commercial data brokers, the implications for that usage, and what needs to be done to address privacy problems. The government must bring itself fully to heel in the area of privacy. If it is going to outsource its data needs to commercial data brokers, it needs to attach the privacy standards it would have been held to if it had collected the data itself. Outsourcing is not an excuse for evading privacy obligations. Report authors: Bob Gellman and Pam Dixon.