WPF participant in Designing our Digital Society Workshop, Pacific Northwest College of Art

Pam Dixon will be participating in a special Workshop at the Pacific Northwest College of Art, “Designing our Digital Society.” The Workshop is open to the public, and will be held from 4pm-7 pm Tuesday, April 25, 2017. The Workshop will be held at the Pacific Northwest College of Art, in the famed “511 Building,”

WPF Participating in G20 Digital Ministerial

WPF’s Pam Dixon is speaking as a stakeholder at the G20 Digital Policies for the Future Multi-stakeholder Conference taking place 6 April in Dusseldorf, Germany. The event brings together 300 G20 country stakeholders to discuss aspects of digital transformation. WPF’s role will be to discuss encouraging transparency and creating confidence in the digital world on panel

WPF at RightsCon to Present on Digital Identity, Digital Rights

We are honored to be speaking on two panels at this year’s RightsCon, an event that takes place 29-31 March in Brussels, Belgium. Both of our panels will be on the 31 of March. Here is some additional reading and information for each of the panels: Panel 1: Managing Concerns Around Digital Identity, Fri, 9:00-10:15, Innovation, 1st Floor….

WPF Report – Privacy, the Precision Medicine Initiative, & the All of Us Research Program: Will Any Legal Protections Apply?

Medical treatments tailored to each individual’s physiology and genetic history have long been a dream, but this dream is data-intensive. Until recently, the lack of a broad set of detailed health information from a wide variety of research subjects stymied medical research efforts. The most current effort to turn personalized, tailored medicine into a reality is the Precision Medicine Initiative (PMI), which now includes the All of Us research program. It is this full PMI/All of Us research program, begun in 2015, that hopes to gather an unprecedented amount of detailed biomedical data sets — including biospecimens and detailed personal health information — from over one million volunteers, the largest group of medical research volunteers that has been assembled thus far in the United States, if not the world.

Collecting, maintaining, reporting results back to research subjects/participants, and sharing biospecimens and health data from over a million volunteers for research requires meaningful privacy protections. This report analyzes those protections.