Health Privacy

About health privacy, World Privacy Forum key health privacy resources

The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues. 

Some of our most frequently accessed health privacy resources include:

* A Patient’s Guide to HIPAA

* Medical Identity Theft Page (resources, reports, more)

* Health privacy tagged materials 

* HIPAA tagged materials 

* Electronic Health Records tagged materials 

* Common Rule and Human Subject Research Protection tagged materials

* Genetic privacy tagged materials 

We have many more publications and resources. For a full list of topics and publications, see our key issues page.

See below for health privacy news and content by date.

WPF files comments on new FERPA student health privacy guidance

The World Privacy Forum filed comments to the US Department of Education regarding its student health privacy guidance published August 18, 2015. The World Privacy Forum supports the DoE guidance, which clarifies how universities and colleges are to handle sensitive student medical records in cases of non-medical litigation. The guidance notes that educational institutions should

WPF to present domestic violence privacy and safety training workshop this week

WPF Executive Director Pam Dixon will be presenting a two hour technology and privacy training at the National Network to End Domestic Violence Tech Summit. The training will be geared to professionals who work with survivors of domestic violence, stalking, and related issues. The workshop will cover the key emerging aspects of social media safety

WPF files comments on wellness programs and privacy: urges EEOC to address privacy challenges

The World Privacy Forum filed comments with the Equal Employment Opportunity Commission about wellness programs and related privacy impacts to individuals. Many Americans now take part in employer wellness programs, and they are increasingly and justifiably concerned about the sensitive information these programs are gathering, sometimes in return for incentives such as discounts on pricing for health insurance. These comments to the EEOC address some of the most significant challenges individuals face, including voluntariness, fairness, due process, and information sharing outside of HIPAA.