The Nuremberg Code, an extraordinary document around ethics and research on human subjects written after the research abuses that took place during World War II, is akin to a global Emancipation Proclamation for human research subjects. The Nuremberg Code’s 10 principles remain a timeless rendering of thought on what should be in place prior to any entity conducting research on human subjects, and this code forms the philosophical foundation of a regulation in the US known as the Common Rule. We have written extensive comments on the US proposal that will update the Common Rule…
Chris Hoofnagle of Berkeley Law has just published arguably the single most important archive in privacy today: it is the transcripts of six of the HEW meetings in the early 197os that formed the origins of today’s Fair Information Practices. FIPs have now for 40 years formed the cornerstone of most of the privacy laws passed globally. Long lost to the dust of time, the original hearing transcripts have never been available online, and even access to the paper versions have not been widely available.
FTC Privacy Roundtable — The World Privacy Forum filed comments last week for the FTC Privacy Roundtables, the first of which will be held December 7, 2009. The WPF comments urged the FTC to consider the Fair Credit Reporting Act as a key privacy model to apply to additional areas, to use the full version of Fair Information Practices, and discussed how a rights-based framework was the key to advancing consumers’ interests. The comments discussed list brokers at length, and explained how even the most informationally cautious consumer will land on numerous marketing lists and databases. The WPF comments noted that not all marketing lists are used to target ads to consumers; some lists and databases are used to deny consumers goods and services. The comments contain a detailed section on privacy frameworks, a section on direct marketing, and an appendix with supporting information.
Madrid Declaration — A significant civil society document with more than 100 signatories worldwide has been published in conjunction with the 31st annual meeting of the International Conference of Privacy and Data Protection Commissioners. The document, known as the Madrid Declaration, affirms support for the complete canon of fair information practices as expressed by the OECD, affirms support of privacy as a fundamental human right, and warns that “the failure to safeguard privacy jeopardizes associated freedoms, including freedom of expression, freedom of assembly, freedom of access to information, non-discrimination, and ultimately the stability of constitutional democracies.”
Information about fair information practices.