Identity ecosystems are a central aspect of global digitalization; the principle of Do No Harm must be a policy priority and commitment

Identity is a data-rich resource that acts as a key to connect all levels of emerging digital ecosystems. All forms of ID carry some risk, but digital forms of ID, or “dematerialized ID,” cuts across all sectors and links copious data about individuals, their behaviors, financial status, associates, and potentially even political and religious views. Over time, distinct patterns emerge from the linked data and create new kinds of risks for individuals and groups. As the world becomes increasingly and intensely digitalized, we can expect challenges in the identity space to grow apace unless proactive attention is given to identifying and mitigating the current and future risks.

WPF advises National Institutes of Health re: Genomic Data Sharing Policy

WPF filed comments to the National Institutes of Health (NIH) regarding its Genomic Data Sharing Policy. WPF recognizes that NIH is attempting to create a reasonable standard. Nonetheless, WPF urged NIH to better “future proof” its genomic data sharing proposal, and in particular requested NIH to look further into key areas, including the impacts of “genomic big data” and the limits of deidentification.