The Nuremberg Code, an extraordinary document around ethics and research on human subjects written after the research abuses that took place during World War II, is akin to a global Emancipation Proclamation for human research subjects. The Nuremberg Code’s 10 principles remain a timeless rendering of thought on what should be in place prior to any entity conducting research on human subjects, and this code forms the philosophical foundation of a regulation in the US known as the Common Rule. We have written extensive comments on the US proposal that will update the Common Rule…
The World Privacy Forum filed comments today on the Office of Management and Budget’s proposed revision to a document that advises Federal agencies on how to handle the information they store. The document, OMB Circular A-130, Managing Information as a Strategic Resource, establishes policies for the management of federal information resources, including information the US holds
The World Privacy Forum submitted comments to the Securities and Exchange Commission today requesting that the SEC do more to protect the privacy of consumers’ asset information. Asset information — the financial information attached to mortgages, car loans, and other consumer borrowing activities– is very attractive to the consumer data industry. We would be happier with the current SEC proposal if it were practical to keep all sensitive asset-level data under the direct control of the Commission or, perhaps, the Consumer Finance Protection Bureau. Direct involvement by a federal agency, while no guarantee of a better outcome for data subjects, would provide better and clearer accountability for maintenance of the data as well as the possibility of meaningful enforcement.
This resource page is a curated list of WPF public comments to agencies, as well as other public comments focused on privacy.
India’s national biometric ID card — In the May/June, 2013 issue of Foreign Policy Magazine, Pam Dixon writes about the privacy issues related to India’s national biometric ID card. In the piece, Mission Creep, Dixon discusses how government-issued biometric ID cards that serve as national ID cards and as the basis for employment and financial transactions create profound civil liberties and privacy challenges that are neither easily or well-constrained by government policy.