Blog Post

Internet and consumer privacy — The World Privacy Forum’s executive director Pam Dixon will testify about online consumer privacy before the House Committee on Energy and Commerce today.

TACD — The Trans Atlantic Consumer Dialogue (TACD), which WPF is a member of, has sent a letter regarding Internet privacy to a Congressional subcommittee explaining that European privacy controls are not burdensome, but rather of key importance. The TACD is a forum of more than 80 US and European consumer groups and represents several hundred million consumers in North America and the United States.

Medical ID theft — The World Privacy Forum has released a new map that reveals the geography of medical identity theft. This is the first map of its kind, and is based on the Federal Trade Commission Consumer Sentinel data. The map is interactive, and gives details on the cities where medical identity theft occurred over the course of a year. The World Privacy Forum published the first report on medical identity theft in 2006, coining the term in the report and bringing the crime to public attention. WPF continues to actively research this important privacy issue.

Medical privacy and HIPAA — The World Privacy Forum today filed its comments on the proposed changes to the HIPAA privacy rule, supporting some proposed changes and suggesting additional changes to enhance patient choice. In particular, the WPF supports the new patient right to an access report that has been added (p. 4), and has requested that Health Information Exchanges also be required to provide accountings of disclosures to patients (p. 18). The WPF generally argued that HHS needs to look forward and allow changes in information technology to fully benefit patients by providing the facility for more accounting rather than less (pp. 2-3) . If the HIPAA rule gives patients a greater ability to monitor how their information is used and disclosed, patients will pay attention and requests for accounting of disclosures will become more common.

Online privacy — Executive director Pam Dixon will be speaking about online privacy and consumers at the Digiday Data Management Summit on Monday, July 18.