Stop SOPA & PIPA —- The World Privacy Forum is deeply concerned about the profound, far-reaching privacy consequences of two bills, SOPA and PIPA. The bills have many negative aspects. In terms of the privacy impacts, one of the serious consequences is that the right to create and use anonymization software tools would be essentailly
World Privacy Forum information and materials on Genetic Privacy.
WPF report announcement — The World Privacy Forum’s newest report examines the privacy and confidentiality issues of cloud computing that have been largely overlooked to date. It is a thorough analysis with policy findings.
Privacy in the Clouds: Risks to Privacy and Confidentiality from Cloud Computing was written by Robert Gellman for the World Privacy Forum.
Cloud computing tips for consumers and business are also available.
Medical privacy | Medicare Part D — In comments filed with the Centers for Medicare and Medicaid Services, the World Privacy Forum requested that CMS give effect to data restrictions that Congress has expressly included in the law. WPF also requested that CMS include in its standard agreements for use of CMS data a requirement that the recipient obtain a certification of confidentiality for all identifiable CMS data. WPF also requested that CMS perform a regulatory impact analysis and publish a system of records notice.
Genetic privacy — Genome-wide association studies present complex and challenging privacy issues. The National Institutes of Health, in a published request for information, asked for public comment on its proposed policy regarding its support and management of a central genomic repository for genome-wide association studies. In comments filed with the National Institutes of Health, the World Privacy Forum raised concerns about the proposed NIH policy in the specific areas of genetic identifiability, secondary uses of the genetic data, oversight, legal protections, and informed consent.