FOR IMMEDIATE RELEASE: San Diego — The World Privacy Forum today published a report finding that the Precision Medicine Initiative has laudable goals, but that many core privacy questions are unaddressed and unanswered. President Obama’s Precision Medicine Initiative (PMI) is an ambitious program with a goal of gathering the freely volunteered health and biospecimen data of over a million people to facilitate medical research. According to World Privacy Forum’s analysis of the PMI documents and plans, the 1 million planned volunteers may be getting more exposure than they bargained for after they donate their medical records and biospecimens to the volunteer research effort.
After four years of negotiations, the EU Commission, Parliament, and Council have reached a final agreement on the General Data Protection Regulation (GDPR). The GDPR is an omnibus data protection law which sets arguably the most extensive data protection laws globally, along with strong enforcement authority. The new law contains many new provisions that move
WPF’s Executive Director Pam Dixon has been named to the editorial board of Technology Science, a new academic journal from Harvard University’s Data Privacy Lab, led by Dr. Latanya Sweeney. The new journal focuses on the intersection of technology and its various impacts on society. The journal is examining this topic in breadth and depth, explaining on its web site: “The scientific study of technology-society clashes is a cross-disciplinary pursuit, so papers in Technology Science may come from any of many possible disciplinary traditions, including but not limited to social science, computer science, political science, law, economics, policy, or statistics.” more …
FOR IMMEDIATE RELEASE June 2, 2015 San Diego — Today, the United States Senate passed the USA FREEDOM Act in a vote of 67 – 32. As passed, the final bill will limit the “bulk collection” of Americans’ phone data after the President has signed the bill into law. “This bill reforms the National Security
President Obama announced a sweeping set of proposals around privacy today as he spoke from the venue of the FTC. The World Privacy Forum is pleased with the announcement, but retain some concerns. “We are pleased to see the Consumer Privacy Bill of Rights head into actual legislation at long last, but we are concerned