Genetic privacy — Genome-wide association studies present complex and challenging privacy issues. The National Institutes of Health, in a published request for information, asked for public comment on its proposed policy regarding its support and management of a central genomic repository for genome-wide association studies. In comments filed with the National Institutes of Health, the World Privacy Forum raised concerns about the proposed NIH policy in the specific areas of genetic identifiability, secondary uses of the genetic data, oversight, legal protections, and informed consent.
AOL released three months’ worth of the detailed search queries of 657,000-plus of its users. The approximately 20 million search queries and the additional data on users’ click-throughs to web sites in the search results are generally highly revealing of individuals’ personal, financial, political, medical, religious, and other preferences as well as the businesses and people they associate with.