Digital Health Ecosystems

WPF to speak before the State House of Mongolia for its National Consultation on e-Health, and before the Human Rights Commission of Mongolia

5 April 2024, Paris, France — World Privacy Forum Executive Director Pam Dixon has been invited to speak at the State House of Mongolia for the Government of Mongolia’s National Consultation on e-Health. She will be speaking twice at this event; first, on the topic of Artificial Intelligence in Healthcare and second, on Big Data in e-Health.  She will be presenting later in the week on AI governance and Privacy before the Ministry of Digital Development and Communications, and on the topic of AI Governance Tools before the National Human Rights Commission of Mongolia. All speeches will take place in Ulaanbaatar, Mongolia.

WPF advises HHS regarding proposed changes to standards for privacy under HIPAA

WPF provided detailed comments to the US Department of Health and Human Services regarding its proposal for changes to HIPAA regarding modifications to the Privacy Rule. Specifically, HHS proposed modifications to standards for the privacy of individually identifiable health information. WPF supports many of the changes proposed in the NPRM.

WPF advises HHS on confidentiality of patient records re: alcohol and drug treatment records

The World Privacy Forum (WPF) submitted comments on an important Notice of Proposed Rulemaking that proposes modifications of the protection requirements for substance use disorder (SUD) treatment records. Currently, health records regarding treatment for Substance Use Disorders receive special protections under what is called Part 2 regulations, or,  42 CFR Part 2. The changes proposed

WHO Health Data Collaborative Meeting: high level overview

Last week, the World Health Organization held an in-person meeting of its health data collaborative leadership, its first face-to-face meeting of this group in four years. WPF attended as a constituency co-chair. Attendees included: members of the Ministries of Health and partner representation from Kenya, Malawi, Cameroon, Botswana, and Nepal; regional institutes’ representatives from KEMRI Welcome

HIPAA and Reproductive Health: A companion FAQ to the Patient’s Guide to HIPAA

July 2022 Download a PDF The World Privacy Forum publishes and maintains A Patient’s Guide to HIPAA, which is a plain language explanation of how to use the law to guard your health privacy. This companion FAQ on HIPAA is focused on reproductive health privacy in response to the many questions we are receiving from