Future of Privacy

Oct 17 2014

WPF urges National Science Foundation to study Statistical Parity

The World Privacy Forum submitted public comments today to the National Science Foundation in response to its request for information about a national privacy research strategy. WPF urged a research focus on statistical parity and its implementation. Statistical parity is a term WPF’s Pam Dixon coined at the FTC’s Big Data, Tool For Inclusion or Exclusion? workshop in September 2014. Here is Dixon’s definition of the term:

Oct 02 2014

Privacy Spotlight: FTC Big Data Event

Big Data and its potential for inclusion and exclusion was on center stage this past September as the FTC held a day-long workshop with experts from industry, technology, privacy, civil liberties, and academia. World Privacy Forum’s Executive Director Pam Dixon, a panelist at the event, spoke about Big Data and privacy, emphasizing several key points, including the need for statistical parity, fairness, and the need for keeping existing consumer protection regulation.

Apr 29 2014

WPF urges Big Data approach that addresses vulnerable populations

The World Privacy Forum’s recent public comments to the White House regarding Big Data focus on using a foundation of Fair Information Principles to address issues connected to bias, error, and privacy regarding big data as applied to vulnerable populations. The comments also discuss large medical research data sets, and stress the importance of applying

Mar 12 2014

New Privacy Resource: The Origins of Fair Information Practices

Chris Hoofnagle of Berkeley Law has just published arguably the single most important archive in privacy today: it is the transcripts of six of the HEW meetings in the early 197os that formed the origins of today’s Fair Information Practices. FIPs have now for 40 years formed the cornerstone of most of the privacy laws passed globally. Long lost to the dust of time, the original hearing transcripts have never been available online, and even access to the paper versions have not been widely available.

Apr 01 2013

Visiting Scholar Lecture Pacific Northwest College of Art

Visiting Scholar: Privacy in a Modern Era — Pam Dixon is a visiting scholar at Portland’s PNCA. She is scheduled to speak with students in a round of interdisciplinary classes, and she will also be giving a public keynote at 7 pm in Swigert Commons. Her public lecture is on Modern Privacy.

National IDs Around the World — Interactive map

About this Data Visualization: This interactive map displays the presence...
Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974

This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process.
COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.