About health privacy, World Privacy Forum key health privacy resources
The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues.
Some of our most frequently accessed health privacy resources include:
* A Patient’s Guide to HIPAA
* Medical Identity Theft Page (resources, reports, more)
* Health privacy tagged materials
* HIPAA tagged materials
* Electronic Health Records tagged materials
* Common Rule and Human Subject Research Protection tagged materials
* Genetic privacy tagged materials
We have many more publications and resources. For a full list of topics and publications, see our key issues page.
See below for health privacy news and content by date.
The World Privacy Forum filed comments with the Equal Employment Opportunity Commission about wellness programs and related privacy impacts to individuals. Many Americans now take part in employer wellness programs, and they are increasingly and justifiably concerned about the sensitive information these programs are gathering, sometimes in return for incentives such as discounts on pricing for health insurance. These comments to the EEOC address some of the most significant challenges individuals face, including voluntariness, fairness, due process, and information sharing outside of HIPAA.
FOR IMMEDIATE RELEASE June 15, 2015 San Diego — Pam Dixon, Executive Director of the World Privacy Forum, has been named to an OECD Advisory Group that will help guide the development of the draft OECD Council recommendations on privacy-protective approaches for the use of health data. This work will be pursued under the umbrella of
The Healthy Cities Project in China is one where mobile devices, mobile health mini-hubs, and sensors are the key way that patients, doctors, government, and enterprises can input, monitor, and access vital health statistics and other information in the cloud. Twenty million people already use this system. Healthy Cities is important for study, because it is a fully established infrastructure in those cities in China where it has been deployed. In the US, the Healthy Cities project is being studied by academics to see how it could be replicated in the US marketplace.
Telemedicine is rapidly advancing. The Mayo Clinic, Kaiser, and other health providers are already in testing to see how doctors can use sleek, rolling telemedicine robots to conduct remote patient interactions and allow for better visual diagnosing. In this video, the company Double Robotics walks us through how the robots look, move, and operate (via an iPad) and how they are already being used in clinical settings today.
This video is part of our Health Technology series which explores emerging and important health technologies Health sensors — devices that can detect blood pressure and other bio readings — have advanced tremendously in the past few years. While many are familiar with fitness devices that monitor activities such as number of footsteps, new and very sophisticated