About health privacy, World Privacy Forum key health privacy resources
The World Privacy Forum is extremely active in health privacy, with a long and successful track record of work in this area. We have done groundbreaking work in the area of medical identity theft, as well as substantive analysis and education on critical privacy aspects of health data such as medical research, genomics, and many other issues.
Some of our most frequently accessed health privacy resources include:
* A Patient’s Guide to HIPAA
* Medical Identity Theft Page (resources, reports, more)
* Health privacy tagged materials
* HIPAA tagged materials
* Electronic Health Records tagged materials
* Common Rule and Human Subject Research Protection tagged materials
* Genetic privacy tagged materials
We have many more publications and resources. For a full list of topics and publications, see our key issues page.
See below for health privacy news and content by date.
HIE stands for “Health Information Exchange.” We encourage all patients to request a copy of their medical records and check for errors, whether on paper or digital. If you have received a copy of your medical record from your doctor and you find mistakes or errors, it is a good idea to correct those files as soon as possible with that health care provider. It’s also important to see if incorrect information has been circulated into a Health Information Exchange, and get it corrected there as well. See more ….
This video is part 3 of a 14-part WPF video series on health privacy and health information exchanges. Many patients may be surprised to learn that a health care provider does not need your permission to share your medical information for treatment purposes within an HIE, just as a doctor does not need permission to send your records via fax to another doctor for treatment purposes. This is true even if your health record is going to a doctor you have never met before. See more ….
This video is part 2 of a 14-part WPF video series on health privacy and health information exchanges. Doctors have been using fax machines to send and exchange patient records for years. We know that an HIE allows medical records to be shared electronically between health care providers. But how does an HIE differ — really — from faxes? What changes, beyond the obvious?
WPF Video Series: Health Information Exchanges and Your Privacy, video 1. HIE stands for “Health Information Exchange.” An HIE allows medical records to be shared electronically between health care providers. Watch video ….
Today, health insurers Blue Shield of California and Anthem Blue Cross announced the creation of a statewide database of patient medical records in California called Cal INDEX. When it launches later this year, it will be the country’s largest health information exchange, or HIE. The exchange is set to disseminate patient’s longitudinal medical files, and