Genetic Privacy | Bioethics — WPF filed comments with the Presidential Commission for the Study of Bioethics today urging the Commission to recognize the need for enhanced genetic privacy protections in a digital world. WPF noted that “The increasing identifiability of genetic data presents major privacy issues for research activities that must be acknowledged and addressed.” WPF suggested four key ways that Certificate of Confidentiality programs could be enhanced for privacy protection, and urged the Commission to speak out about the importance of protecting patient privacy in research activities involving genetic information. “The Commission should advocate providing patients with reasonable controls over research uses of their data as electronic records develop and spread throughout the health care system.” Public comments may be submitted to the Commission until May 25, 2012.
World Privacy Forum information and materials on medical identity theft.
World Privacy Forum information and materials on medical privacy topics.
Consumers can learn about Medical Identity Theft, what how to avoid it, and what actions to take if you are a victim.
In a rare enforcement action of HIPAA, HHS fined an Arizona health care provider $100,000 for a variety of HIPAA violations, especially regarding electronic exchanges of protected health information. The HHS document outlining the reasons for the fine should act as a wake-up call to health care providers using public email, calendaring, and other tools for communication of ePHI. HHS specifically noted that the fined health care provider did not conduct an adequate risk assessment prior to using the email and Internet tools. The full HHS document is a must-read for health care providers. WPF has been warning about the need for full e-risk assessments since 2005 and strongly advocates for medical-identity-theft-specific risk assessments.