July 2022 Download a PDF The World Privacy Forum publishes and maintains A Patient’s Guide to HIPAA, which is a plain language explanation of how to use the law to guard your health privacy. This companion FAQ on HIPAA is focused on reproductive health privacy in response to the many questions we are receiving from
This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era — an era that was characterized by the use of mainframe computers and filing cabinets. Today’s digital information era looks much different than the ’70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process.
Download PDF Download ePub Donate Credits → Version 2.0 Prepared by Robert Gellman for the World Privacy Forum, with assistance from Pam Dixon, executive director, World Privacy Forum. John Fanning, former privacy advocate, U.S. Department of Health and Human Services, and Dr. Lewis Lorton, health technology and privacy expert contributed to the first edition
This interactive map displays the location of each medical data breach recorded at the US Department of Health and Human Services from 2009-2016. To get the most from the map, you can view breaches by year, by region, and in a text list.
To score is human. Ranking individuals by grades and other performance numbers is as old as human society. Consumer scores — numbers given to individuals to describe or predict their characteristics, habits, or predilections — are a modern day numeric shorthand that ranks, separates, sifts, and otherwise categorizes individuals and also predicts their potential future actions. This new report by Pam Dixon and Robert Gellman explores this issue of predictive scores and privacy.