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New Report: The Geography of Medical Identity Theft

This new WPF report finds that medical identity theft is still a crime that causes great harms to its victims, and that it is growing overall in the United States; however, there’s a catch. The national consumer complaint data suggests that the crime is growing at different rates in different states and regions of the US, creating medical identity theft “hotspots.” These hotspots are important for patients, policymakers, and healthcare stakeholders to know about so as to address potential risks.

WPF Report – Privacy, the Precision Medicine Initiative, & the All of Us Research Program: Will Any Legal Protections Apply?

Medical treatments tailored to each individual’s physiology and genetic history have long been a dream, but this dream is data-intensive. The most current effort to turn personalized medicine into a reality is the Precision Medicine Initiative (PMI), which will collect and share biospecimens and health data from over a million volunteers for research — this report analyzes the privacy protections for this initiative.

WPF Report — The Scoring of America: How Secret Consumer Scores Threaten Your Privacy and Your Future

To score is human. Ranking individuals by grades and other performance numbers is as old as human society. Consumer scores — numbers given to individuals to describe or predict their characteristics, habits, or predilections — are a modern day numeric shorthand that ranks, separates, sifts, and otherwise categorizes individuals and also predicts their potential future actions. This new report by Pam Dixon and Robert Gellman explores this issue of predictive scores and privacy.

Home of the Patient’s Guide to HIPAA: How to Use the Law to Guard your Health Privacy

In this guide, we talk about laws, rules, regulations, act, and statutes. Lawyers can find real and technical differences between these terms, but the differences don’t matter much to patients. For our purposes, the terms are generally interchangeable references to legally binding policies or obligations.

Privacy in India Video Series: WPF

India and Privacy — WPF has researched privacy extensively in India, and has documented a number of key privacy issues in a video series. So far, 5 videos in the series have been released. All of the videos were shot on location in India and feature Pam Dixon, with videographer Blake Hamilton. These videos offer a rare and early glimpse into privacy interactions and issues in India