Key Resource

Mar 05 2019

A Patient’s Guide to HIPAA: New eBook + complete update

A PATIENTS’ GUIDE TO HIPAA: NEW E-BOOK + COMPLETE UPDATE For immediate release 5 March 2019 Oregon: World Privacy Forum’s classic and highly popular health privacy resource for consumers, A Patient’s Guide to HIPAA, has been given a complete end-to-end update and is now also available as an ebook. A Patient’s Guide to HIPAA

Dec 18 2013

Data Brokers Opt Out List

Top Ten Opt Out
Opt Out Possible
Partial Out Out
FCRA Opt Out
No Opt Out
Opt Out Unclear

Mar 02 2013

Privacy in India Video Series: WPF

India and Privacy — WPF has researched privacy extensively in India, and has documented a number of key privacy issues in a video series. So far, 5 videos in the series have been released. All of the videos were shot on location in India and feature Pam Dixon, with videographer Blake Hamilton. These videos offer a rare and early glimpse into privacy interactions and issues in India

Jun 15 2012

Health Information Exchange in California

HIE interactive map — WPF has posted a new interactive map of health information organizations and exchanges in California. This is a map-in-progress, and we will be adding data to the map in stages.

Apr 20 2012

Consumer Tips: Medical Identity Theft- What to Do if You are a Victim (or are concerned about it)

World Privacy Forum information and materials on medical privacy topics.

New Report – Without Consent: An analysis of student directory information practices in U.S. schools, and impacts on privacy

Without Consent is the first major benchmarking privacy report to examine school directory information practices and related privacy issues in a multi-year study across more than 5,000 schools at the primary, secondary, and postsecondary levels. The research found troubling and challenging student privacy problems that need to be urgently addressed. The report contains extensive findings and recommendations regarding student privacy, and includes best practices, sample forms, and resources for schools, parents, and students.
Patient’s Guide to HIPAA: How to Use the Law to Guard your Health Privacy

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Report: The Geography of Medical Identity Theft

This new WPF report finds that medical identity theft is still a crime that causes great harms to its victims, and that it is growing overall in the United States; however, there’s a catch. The national consumer complaint data suggests that the crime is growing at different rates in different states and regions of the US, creating medical identity theft “hotspots.” These hotspots are important for patients, policymakers, and healthcare stakeholders to know about so as to address potential risks.