Key Resource

Mar 05 2019

A Patient’s Guide to HIPAA: New eBook + complete update

A PATIENTS’ GUIDE TO HIPAA: NEW E-BOOK + COMPLETE UPDATE For immediate release 5 March 2019 Oregon: World Privacy Forum’s classic and highly popular health privacy resource for consumers, A Patient’s Guide to HIPAA, has been given a complete end-to-end update and is now also available as an ebook. A Patient’s Guide to HIPAA

Dec 18 2013

Data Brokers Opt Out List

Top Ten Opt Out
Opt Out Possible
Partial Out Out
FCRA Opt Out
No Opt Out
Opt Out Unclear

Mar 02 2013

Privacy in India Video Series: WPF

India and Privacy — WPF has researched privacy extensively in India, and has documented a number of key privacy issues in a video series. So far, 5 videos in the series have been released. All of the videos were shot on location in India and feature Pam Dixon, with videographer Blake Hamilton. These videos offer a rare and early glimpse into privacy interactions and issues in India

Jun 15 2012

Health Information Exchange in California

HIE interactive map — WPF has posted a new interactive map of health information organizations and exchanges in California. This is a map-in-progress, and we will be adding data to the map in stages.

Apr 20 2012

Consumer Tips: Medical Identity Theft- What to Do if You are a Victim (or are concerned about it)

World Privacy Forum information and materials on medical privacy topics.

COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.
New Report – Without Consent: An analysis of student directory information practices in U.S. schools, and impacts on privacy

Without Consent is the first major benchmarking privacy report to examine school directory information practices and related privacy issues in a multi-year study across more than 5,000 schools at the primary, secondary, and postsecondary levels. The research found troubling and challenging student privacy problems that need to be urgently addressed. The report contains extensive findings and recommendations regarding student privacy, and includes best practices, sample forms, and resources for schools, parents, and students.
Patient’s Guide to HIPAA: How to Use the Law to Guard your Health Privacy

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