Health Information Exchanges

 
HIE stands for Health Information Exchange. An HIE allows medical records to be shared electronically. HIE relies on using networking technologies to enable your doctor to share records with another health care provider over the Internet, instead of by fax. As a result, doctors participating in an HIE may have a much more complete picture of your medical history to work from, even if they have only had limited or even in some cases, no previous contact with you as a patient.

WPF has done a lot of work on HIE privacy. Our work is linked below and included in the blog posts.

World Privacy Forum’s HIE Tips, Glossary, and FAQ for Patients:

This FAQ, glossary, and tipsheet about Health Information Exchanges is designed to work in tandem with our HIE map and directory of California HIEs, available here. If you have questions about HIPAA beyond those answered here, please see our extensive resource, A Patient’s Guide to HIPAA.

WPF’s Interactive Map of HIE’s in California:

This map identifies Health Information Exchanges in California. HIEs are an increasingly popular way for hospitals, pharmacies, labs, and emergency room physicians to share patient information. Some HIEs just share information within one hospital network, some share information across many hospitals or physicians in a region, and some HIEs share information across the state. If your health information is being shared through an HIE, your lab test results, medications, medical history, or other clinical information related to your health care may be included in the sharing. It’s important for you to know when your records are being shared, where, and what controls you have over that.

More HIE information are in the blog posts below.

California insurers announce largest Health Information Exchange in the US

Today, health insurers Blue Shield of California and Anthem Blue Cross announced the creation of a statewide database of patient medical records in California called Cal INDEX. When it launches later this year, it will be the country’s largest health information exchange, or HIE. The exchange is set to disseminate patient’s longitudinal medical files, and

Health Information Exchanges in California

WPF’s new interactive map identifies Health Information Exchanges in California. A Health Information Exchange, or HIE, is technology that enables the electronic movement of health-related information among health care providers and others. HIEs are an increasingly popular way for hospitals, pharmacies, labs, and emergency room physicians to share patient information. HIEs can exchange records across one hospital, across multiple hospitals in a region, or across a whole state. If your health information is being shared through an HIE, your lab test results, medications, medical history, or other clinical information related to your health care may be included in the sharing. See more about HIEs and our California HIE Map here.

News Release: WPF Publishes New e-Health Privacy Resources for Consumers

  July 15, 2013 New Consumer Tipsheets, FAQ, and Glossary about Health Information Exchanges Patients have a new resource that simplifies the clutter and confusion around Health Information Exchanges. WPF has published a new HIE Tipsheet and FAQ. These resources are written for consumers, and delivers bite-sized, digestible information about the most important privacy aspects

Public Comments: August 2011 – Proposed changes to the HIPAA Privacy Rule regarding Accounting of Disclosures under the Health Information Technology for Economic and Clinical Health Act

The World Privacy Forum today filed its comments on the proposed changes to the HIPAA privacy rule, supporting some proposed changes and suggesting additional changes to enhance patient choice. In particular, the WPF supports the new patient right to an access report that has been added (p. 4), and has requested that Health Information Exchanges also be required to provide accountings of disclosures to patients (p. 18). The WPF generally argued that HHS needs to look forward and allow changes in information technology to fully benefit patients by providing the facility for more accounting rather than less (pp. 2-3). If the HIPAA rule gives patients a greater ability to monitor how their information is used and disclosed, patients will pay attention and requests for accounting of disclosures will become more common.