08/23/2007 AHRQ / databases / medical privacy
In June, the Agency for Healthcare Research and Quality (AHRQ) published
a request for information about its plan to create a "public/private"
national database of healthcare information tentatively called the "National
Health Data Stewardship entity." WPF and EFF raised questions about
ownership and management of the proposed database (Would this database
fall under HIPAA? Would it fall under the Privacy Act of 1974?), questions
about identifiability of patients in the database, and suggested that
a full-time, independent privacy officer should be established for the
program from the inception of the planning stages. The comments also discussed
the numerous questions relating to data security (including medical identity
theft) and data quality, as well as consent, access, and opt-out procedures
for patients that the proposed national database raises.
Read the joint comments
(PDF) | Permalink