HIPAA

Jun 03 2022

WPF urges HHS to clarify the harms of medical identity theft for victims

WPF has urged HHS to clarify the intersection between HIPAA compliance and harms resulting from medical identity theft in its response to the Request for Information from the Office of Civil Rights of the Department of Health and Human Services regarding implementation of the HITECH Act. WPF has a long history of work on the issue of medical identity theft, which has informed its response to HHS.

May 18 2022

HIPAA Compliant, or HIPAA Covered?

One of the most common questions we receive is: what does HIPAA compliant mean? Well.. If a company or entity or health app is not covered by HIPAA, it may still say that it is “HIPAA compliant.” HIPAA compliant does not mean the same thing as being a HIPAA- covered entity. If you see the

Aug 13 2021

WPF supports CDC guidance prohibiting use of vaccine recipients’ data for commercial marketing purposes, urges that protections are extended to proof of vaccination systems

WPF’s Executive Director spoke today before the US Center For Disease Control’s ACIP Committee regarding privacy protections for vaccine recipients’ data. WPF supported the CDC’s prohibition on the use of vaccine recipient data for commercial marketing purposes. The CDC’s Vaccination Program Provider Requirements, published in May 18, 2021, specifically prohibits the commercial marketing use of

Jul 01 2021

WPF urges FTC Chair and Commissioners to update FTC Health Breach Notification Rule

The FTC held an historic open FTC Commission meeting, during which the Chair and Commissioners conducted their business openly and also provided an opportunity for public comments. The World Privacy Forum was selected to provide a public comment, which focused on the need to update the Health Breach Notification Rule.

May 06 2021

WPF comments on HHS proposal to change HIPAA Privacy Rule

WPF filed comments today with the Department of Health and Human Services regarding an important Notice of Proposed Rulemaking that, if adopted, will bring substantial changes to patients’ electronic health records and how they are managed, among other issues. In general, we found much to support in the NPRM. However, there are sections of the

National IDs Around the World — Interactive map

About this Data Visualization: This interactive map displays the presence...
Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974

This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process.
COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.