WPF filed comments today with the Department of Health and Human Services regarding an important Notice of Proposed Rulemaking that, if adopted, will bring substantial changes to patients’ electronic health records and how they are managed, among other issues. In general, we found much to support in the NPRM. However, there are sections of the
The World Privacy Forum participated in the C20 Civil Society Consultation on Sustainable Health Security Preparedness 20 April, 2021, part of the preparatory work for the G20 health-related declaration. (Rome Declaration.) In our attached statement to the C20 / G20, we outline three key requirements to allow safe and sustainable health data ecosystem knowledge utilization, including privacy and effective data governance, interoperability, and robust inclusion of LMICs and vulnerable or
marginalized populations in standards development.
Recently, ID4Africa held an extremely compelling and meticulously researched livecast on the issue of gender and identity systems, with good discussions that also touched on privacy in this context. The livecast boasted an excellent roster of experts, all of whom are active work in the field. Each presented well-substantiated, groundtruthed research and insight about the myriad ways that how identity systems mediate gender matter a great deal. The cumulative effect was eye-opening.
There are many transparency documents that have been published relating to the US Intelligence Community. There are new updates to several key documents, which we have listed and linked below. While admittedly dense reading, these are key privacy-related documents relevant to US Government operations and activities and taken together, are an important resource. January 2021
The World Privacy Forum has submitted comments to the FTC regarding its proposed consent order In the Matter of Flo Health, Inc. requesting that the FTC conduct further analysis regarding the FTC Health Data Breach Rule and its potential applicability to the alleged unconsented sharing of women’s pregnancy, menstruation, mental health, and other data with
