FOR IMMEDIATE RELEASE: San Diego — The World Privacy Forum today published a report finding that the Precision Medicine Initiative has laudable goals, but that many core privacy questions are unaddressed and unanswered. President Obama’s Precision Medicine Initiative (PMI) is an ambitious program with a goal of gathering the freely volunteered health and biospecimen data of over a million people to facilitate medical research. According to World Privacy Forum’s analysis of the PMI documents and plans, the 1 million planned volunteers may be getting more exposure than they bargained for after they donate their medical records and biospecimens to the volunteer research effort.
The World Privacy Forum submitted comments to the Food and Drug Administration in response to its request for public input on its draft guidance on the cybersecurity of medical devices. The privacy considerations for medical devices is significant. Because there are a large number of stakeholders in the life cycle of cyber medical devices, the stakeholders are subject
The report US- EU Privacy Shield Analysis: Winners and Losers was published April 6, 2016. Report authors: Robert Gellman and Pam Dixon You are at the report main page, where you can download the full report in PDF format. Report Links: Download full report (PDF, 9 pages) Read “report in brief” front matter below. — The Analysis in
The World Privacy Forum commented on an important proposal to make changes to the existing rules regarding the confidentiality of alcohol and drug abuse patient records. The proposal is from the Substance Abuse and Mental Health Services Administration (SAMHSA), part of the US Department of Health and Human Services. These proposed rule changes are important, as the current
Elder financial abuse is a terrible crime, and it has not gotten nearly the attention it deserves. Today the Consumer Financial Protection Bureau (CFPB) issued a important report to financial institutions about what they can do to spot this issue. The World Privacy Forum has testified about senior identity theft — including financial and medical