WPF urges National Institutes of Health to expand privacy guidance for researchers

WPF is urging the National Institutes of Health to do more to properly advise the research community and to protect data subjects in its draft guidance on data management and sharing. WPF is asking for changes to the NIH guidance because in the US, much health research data in the hands of researchers is not subject to the privacy or security rules in HIPAA.

World Privacy Forum named as a top ten digital identity influencing organization globally 

WPF has been recognized as one of the leading organizations globally influencing privacy, security, inclusion, and fairness in digital identity systems. Goode Intelligence, which produces an annual report on digital identity around the world, has named WPF as a top ten globally influencing organization, as well as ID4Africa, Women in Identity, and others.  WPF has

Expert Commentary: Kenya follows the path of European-style Data Protection

Guest Post by Dr. Isaac Rutenberg, Director and Senior Lecturer, Centre for Intellectual Property and Information Technology Law, Strathmore University, Nairobi, Kenya. On the 8th of November, the President of Kenya signed into law the Data Protection Act 2019. This action completed a process that spanned more than a decade, and allows Kenya to enter a new phase with respect to the evolving centricity and treatment of data in society. This article looks at the content of the Act, highlights important and interesting provisions, and concludes with predictions as to the implementation.

WPF to testify before NCVHS on emerging privacy concerns in health privacy — Beyond Digitization: Artificial Intelligence, APIs, and health privacy

WPF Executive Director Pam Dixon will testify before the full committee of the National Committee on Vital and Health Statistics (NCVHS) regarding emerging privacy concerns in the healthcare environment, including the role of artificial intelligence, patient authorizations, and automated access to patient health information.  The NCVHS is the statutory [42 U.S.C. 242k(k)] public advisory body

The importance of Doing No Harm: India’s plan to create a new national facial recognition database

This coming Friday, the government of India is planning to announce the winner of a Request For Proposals to create a large, national, centralized facial recognition system for law enforcement purposes. The tender for the project outlines an ambitious program of facial surveillance in India utilizing image databases that law enforcement officers could access in