Opt-out | Financial privacy — The World Privacy Forum has updated its popular Top Ten Opt Out list to reflect several new change made to the Direct Marketing Association opt outs. In the past, some of the DMA opt-outs, like the Direct Marketing Association’s mailing preference lists, used to cost $1. That fee has now been removed for people opting out online. Please see item #3 on the Opt Out list for the complete update.
Genetic privacy | SACGHS — The World Privacy Forum filed extensive comments with the Secretary’s Advisory Committee on Genetics, Health and Society (SACGHS) regarding its draft report on genetic testing oversight, U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of HHS. The World Privacy Forum requested SACGHS pay more attention in its final report to the privacy consequences of unregulated genetic testing that occurs outside the health care sector. The WPF comments note that current and proposed remedies for the misuse of genetic information tend to focus on the use of the information within the health care treatment, payment, and insurance systems. What is crucially important is to analyze how to protect genetic information in the realm of commercial collection, maintenance, use and disclosures. Another area the comments discuss is the potential for new forms of fraudulent activity related to genetic testing (Phantom genetic testing, that is, genetic tests marketed to consumers that are not even real or viable genetic tests.) The World Privacy Forum specifically recommended that the National Committee on Vital and Health Statistics be tasked with looking at this matter, that an independent pre-market assessment mechanism is created for genetic tests offered outside the clinical setting, and that privacy be expressly discussed in the overarching recommendations in the final report.
Fair Information Practices — The World Privacy Forum has updated its page on Fair Information Practices to include the new work by Robert Gellman in this area. His article, Fair Information Practices: A Basic History, December 2007, is an important history of the development of Fair Information Practices. It includes information that even experts familiar with FIPs may not know.
Medical identity theft update — The Federal Trade Commission released its national ID theft survey, which for the first time contains statistics specific to medical identity theft. According to the FTC report (p. 21), 3 percent of all identity theft victims in 2005 were victims of medical identity theft, which means of 8.3 million ID theft victims, approximately 250,000 people were victimized by medical identity theft in that year alone. The purpose of the World Privacy Forum 2006 report was to prove that medical identity theft existed, and was already occurring in large numbers. At the time the report was published, the crime of medical identity theft had not been specifically studied, nor was it understood to exist. The FTC statistics abundantly affirm the thesis and conclusions of the WPF report.
Security Freeze update | Financial privacy — As of November 1, 2007, the ability to place a security freeze is available nationwide at the three major credit reporting bureaus. To date, 39 states and the District of Columbia have some form of security freeze law. But now, even in the states that did not pass security freeze legislation, consumers will be able to place a security freeze. A security freeze lets you stop the disclosure of your credit report by a credit bureau. A security freeze can be especially helpful to individuals who are having persistent problems with identity theft. For more information: