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WPF participates in White House Roundtable on Data Brokers

The World Privacy Forum was honored to participate in a White House Roundtable on the topic of Data Brokers, a topic WPF has spent decades researching and working on. In its readout of the roundtable, the White House noted that “Participants underscored how the data broker economy enables discriminatory practices in credit underwriting, insurance, housing,

Archived Privacy Policy 2018-2021

Archived Privacy Policy, May 2018-Jan. 2021. This privacy policy was updated May 2018 and is effective May 25, 2018. Earlier versions of our policy are linked at the bottom of the page. This privacy policy applies to the World Privacy Forum web site, www.worldprivacyforum.org, and to other privacy activities of the World Privacy Forum. Personal

COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.

May 19, 2020 WPF Statement regarding HHS Secretary’s Section 1135 COVID-19 HIPAA Waiver

This statement discusses a 72-hour “statutory waiver” of 5 basic HIPAA rights (including the right to confidential communications). The waiver is triggered by the Secretary of HHS and applies for a 72-hour period beginning upon implementation of a hospital disaster protocol. This statement discusses this waiver, what it is, what is means, who is impacted, and our recommendations.