Data broker opt out issue — The World Privacy Forum sent a letter to the Federal Trade Commission asking it to look into four companies offering online consumers the ability to opt out, then asking those consumers to use a variety of postal-mail-based methods to do so.
New Health Privacy Resource — The Patient’s Guide to HIPAA is the first comprehensive guide to medical privacy written expressly for patients with a practical eye as to how to use the law to protect privacy. It is a major privacy resource for patients, written directly and without legalese. The Patient’s Guide to HIPAA is
“This guide is not just a retread of what HIPAA is and does,” said Pam Dixon, executive director of the World Privacy Forum. “Our guide gives patients practical details and strategies on how they can use the law to protect their privacy and navigate the medical system. Best of all, it is easy to use.”
CVS Caremark | FTC proposed consent agreement — The World Privacy Forum filed comments with the Federal Trade Commission in response to its proposed consent agreement with the CVS Caremark pharmacy chain. The proposed agreement is in resonse to a CVS data breach. The agreement does not impose a monetary penalty on CVS, and does not provide remedies for consumers affected by the data breach.
Resource — A substantial new resource for individuals seeking to research California laws and regulations regarding health information has come online. The CHILI database is a project of the California Office of Health Information Integrity, and has interfaced with the California Privacy and Security Advisory Board, which the World Privacy Forum co-chairs. The CHILI database can be searched by HIPAA section, California Code section, California health information law keywords, or by statutory scheme.