Data Brokers

Feb 19 2016

Op Ed on Employer-Sponsored Wellness Programs

Today The Guardian published an op-ed I wrote about employer-sponsored wellness programs. You can find that op-ed here. I have researched and written about HIPAA, health plans, wellness, predictive analytics, and big data for years now. A lot of my work coalesced together when Robert Gellman and I researched and wrote the Scoring of America

Nov 16 2015

WPF Congressional Testimony on Data Broker Security Available

WPF’s Congressional testimony of Nov. 3, 2015 before the US Senate Judiciary Committee is now available online. Please visit the Senate download site here to access the written testimony. The testimony focuses on data brokers, information security, and regulatory controls. A video of the actual hearing is also available from the Judiciary website, that is

Nov 02 2015

WPF to testify before Congress on data broker security

WPF Executive Director Pam Dixon will testify before the Senate Judiciary this Tuesday, Nov. 3. The hearing is on data broker security, with Chairman Flake presiding. Hearing details: Data Brokers – Is Consumers’ Information Secure? Subcommittee on Privacy, Technology and the Law Date: Tuesday, November 3, 2015 Time: 2:30 pm Location: Dirksen Senate Office Building 226 Presiding: Chairman Flake

Aug 17 2015

Consumer Tips: World Privacy Forum’s Top Ten Opt Outs

Many people have told us that they think opting out is confusing. We agree. Opting out can range from the not-too-difficult (the FTC’s Do Not Call list is a fairly simple opt out) to the challenging (the National Advertising Initiative opt out can be tricky). Our hope is that this list will clarify which opt out does what, and how to go about opting out.

Apr 13 2015

Collections Scoring, Privacy, and Consumer Impacts

This coming Thursday, Pam Dixon will be presenting new research on collections scoring, privacy, and impacts on low and middle income consumers. The Dixon/Gellman report, The Scoring of America, sparked a national conversation about analytics and fairness in the realm of consumer scores. This talk focuses on one particular category of scoring, that of using

National IDs Around the World — Interactive map

About this Data Visualization: This interactive map displays the presence...
Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974

This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process.
COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic

The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.